It's been a
wonderful year and you are our sweet little princess. You have
grown and changed so much and the love we have just grows with
you. You had to have your second operation now that you are
stronger and even though it's scary we know you are in good
hands. This is part 2 of your story baby girl.
03-27-07 We took you to Children's
Hospital so Dr. Permut could see you. He said you looked great
and would be ready for your operation on the 19th. Dr. Kim chose
the date but Dr. Permut is your very gifted surgeon. He explained
that they would use a valve made from cow to replace the one that
is not working in your heart. This would fix the problem you have
and the procedures for the future would be easy. All they would
need to do is go in and clean your valve from time to time. He
explained that the operation would take about 4-5 hours and they
would use the by pass machine to stop your heart. They did this
last time too. See they need your heart to be still so they can
work without hurting you. There is minor risk and is scary
however we know you will be ok. You are after all in God's
Tues 04-17-07 We
went to Children's Hospital to have your blood work and to check
your sats and EKG as well as having an Echo. They use the ultra
sound machine to look at your heart, by the time you read this
you will know what that is. :) Everything went just fine and the
nurses thought you were great.
is when we arrived at the hospital. You will be having your
operation at 9am but they want us there early so they can check
you in and give you Anesthesia. We went back to a small room with
you where we sat and played for a little while. The doctors came
and took you back to prepare you and mommy and daddy went to sit
with Gammy, Grumpa, and Grandma. The nurse called us to let us
know what steps were being taken so we would know you were o.k.
She called at 9am to let us know they were starting the operation
and then to let us know when you went on and off the by pass
machine. 5 hours later you were transferred to ICU and we were
able to see you around 1pm. You looked so good even with all your
tubes you were peaceful and resting. We were scared but you came
back to us and that is what we prayed for. Now you will heal and
later we will come back for check ups and cleaning of your new
Fri 04-20-07 Today
your chest tube was removed, that made you mad of course but you
calmed down and are breathing very nice on your own. You have a
little fever so they are running tests to make sure you're o.k.
Everything is going just fine and the ICU nurses think you are
just the cutest little thing. They have been looking at the
pictures we brought of you and they also signed your book. We are
so blessed to have the staff at Children's. They care very much
Sat 04-21-07 They
removed another line today and you are resting peaceful. We have
been coming home at nights so that we can have the house ready
for you. The ICU is too busy for us to rest and the staff
promised to let us know if you needed us. You are happy and ready
to be moved to the main floor now.
04-22-07 You are still in ICU just waiting for a room on
the floor. We just love you so much and you are so strong. You
are my hero little girl after everything you have been through
you just get stronger and stronger. You ate some chicken for me
Mon 04-23-07 We finally
moved to the main floor! This is pretty nice, we have our own
room so it's almost like being home! You have some pain of course
so you are taking medicine for that but you want to roll over and
play so bad. You tried but decided it was a little too soon.
04-24-07 You are resting very well and you don't want to
do much but of course you just had a major operation. You eat a
little and you drink a little. You have been trying juice and
whole milk. It's so wonderful that you are doing so much, even
sitting in a highchair. :) The nurses love you so much. Gammy
will stay the night with you tonight because mommy is not feeling
Wed 04-25-07 Gammy said you
had a great night, you ate and drank and rocked with her. In fact
they said you could come home. I called daddy right away and we
went to pick you up! :) By the time we got over there you were
ready to go. Gammy came home with us so she could help mommy
since you will need to be picked up by your bottom for a while.
It's called scooping, just like last time only you are bigger
now. You have follow up appointments with Dr. Kim and Dr.
Thurs 04-26-07 You are
healing so very well and you seem so happy to be home. You
impress me so much my angel, I just can not get over how well you
are sitting and playing. You just want to go go, see we adults
are not as strong.
Fri 04-27-07 Today
you rolled onto your tummy and stayed there, it didn't seem to
hurt you at all! WOW! You just get stronger with each day.
We love you so
much little one and you never fail to amaze those you touch.
There are so many people who think of you with prayers and
warmth. You may never meet them face to face but know you are
very loved angel. We thank everyone who helped you and we thank
God for bringing you to us and for helping you through your
operations. There is much to do in the future but you will come
through and you will grow into a remarkable young lady.